Help Me Go To The Mayo Clinic

This is a hard blog entry to write.

I’ve been preoccupied with a medical condition that is affecting my time and ability to focus on other issues right now. About 3 years ago, after a minor surgery, a very rare form of cancer (Dermatofibrosarcoma Protuberans) was found in the pathology specimen taken from my shoulder. It was apparent that the initial surgery did not get it all.  After seeing a oncologist specialist, I was told I had ten years or so to deal with it, so I shelved the ‘problem’ for the time being.

A few months ago, I returned to the oncologist specialist who upon examination, agreed that it was time for more surgery. I went ahead and had this scheduled in December – and then hesitated once I found out what I might be facing. It wasn’t what I hoped for or expected. I opted instead to see another surgeon who I hoped could perform a Moh’s procedure, which involves less tissue damage. He performed three biopsies and an MRI. I do indeed need additional surgery, I still have the DFSP.  This doctor has had to decline the surgery as it turns out – he doesn’t have the expertise on hand that this procedure would require (I have to be put under anesthesia).

I’ve since been referred to the Mayo Clinic where there are surgical specialists who have the skills and experience necessary. I’m now scheduled to have this done next month. My current best estimate right now is the surgeons, anesthesia, hospital, travel and stay is going to cost $25,000.

I’ve had to deal with immense levels of pain for many years (over 30). Diet and exercise help the most (keep moving!) but I’m definitely slowing down. I’m 100% disabled and have been since the early 1980’s (multiple trauma injuries which is where all this stems from) – but this has never stopped me from “doing” as I’ve always advocated here on the blog. I’m not on disability, SSN or anything at all (no income). Nobody knows I’m disabled because I simply never let anyone know. I’ve always been able to give in the past and help others and I am thankful that I could, but now I need the same.

There are two ways you can help:

a) Food Assets has graciously agreed to pledge 100% of the profits from all sales made will be donated to help me through this financial expense. By placing an order on Food Assets, in return you get your order(s) and the doctors, well, they’ll get the profits, but I get to get better!

b) My wife has set up a Go Fund Me Campaign for Survival Acres (now cancelled due to lack of interest). This is a donation that will be used for the costs and expenses related to the Mayo Clinic medical procedure.

Any sort of help or support is deeply appreciated, thank you.

admin

admin at survivalacres dot com

4 thoughts on “Help Me Go To The Mayo Clinic

  • January 15, 2016 at 10:16 am
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    I’ve never commented on your blog before, but have read it for years. Thanks for helping to open my eyes. I just made a small contribution to your medical fund. Are you sure 25K is enough? I think that’s the cost of an aspirin in a hospital these days.

    Thanks again,
    Keith Elder

    • January 15, 2016 at 10:56 am
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      Thank you for your support, anything at all is very sincerely appreciated (including good healing thoughts)!

      No, I’m not completely sure about what the total costs will finally be, there are some things I won’t know until after this Moh’s surgery takes place. So far, I’ve spent about 10k on prior treatment (surgery and various followup), but this thing is back. The surgeons in Spokane (who unfortunately don’t do Moh’s) were going to operate in December and the hospital’s estimate was $20k.

      This procedure was going to be a ‘wide resection’ and could leave me without use of my arm or shoulder. That wasn’t desirable, obviously. DFSP is deadly is some cases, so I need to deal with this asap.

  • January 15, 2016 at 5:09 pm
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    Admin, sorry to hear you’ve had to endure decades of such pain. While I cannot contribute monetarily, I can at least mention another source of excellent information about cancer.

    Recently I viewed the 9-part series, The Truth About Cancer, A global Quest, by Ty Bollinger. This series features many doctors, patients, and others who all have something to contribute in this field. When the series was first released it was free online, for a limited time. There may be some information in there that can add to your cancer knowledge base. I think the site is thetruthaboutcancer.com.

    Good luck.

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